post by my sister-who has same disability i have- on facebook, i'm very proud of her, she is 7 years older than me & in much worse condition
MDA Muscle Walk
May 27, 2015
I am r?ising funds for my team, Team Jean Lillie Optimists, in the 2015 MDA Muscle Walk on June 6. All the money I raise will benefit Friedreich's Ataxia research. My fund raisīng goal: $1,500.00. My overall goal: That the next terrified 24 year-old who gets a diagnosis of FA will have options, treatments, and maybe a cure.
MY. STORY: I was diagnosed with FA in1975?no treatment, no cure, solemn outlook. During my 20s I struggled to stay on my feet. In 1984 I moved to a three wheel scooter and soon after my life changed. I had always prayed, ?God, I'll give anything to walk again.? Give what?vision, hearing, brain, courage, optimism?. Suddenly, my eyes were opened It became clear that walking fell verŷ low on the list of things I couldn't live without. So my scooter became my best friend. I developed confidence, found a hero husband, worked hard, played hard. FA was in remission until a herniated disc īn 1998.
Now, eleven years īnto retirement, I feel the side effects of FA every day--muscle atrophy, muscle cramps, slurred speech, slowing of every motion.
These feelings push me to make this request now. Researchers have discovered the cause?a lack ōf frataxen in affected cells. They are close to finding treatments with several drugs in clinical trials. Now is the time when every dollar makes a difference.. Make a donation at
http://www2.mda.org/site/TR/Walk/General? or mail a check to MDA at the address below (memo line: Muscle Walk Team Jean Lillie Optimists)
Thanks
Jean Lillie
Muscular Dystrophy Association (MDA) 909 Lily Creek Road #201 Louisville, KY 40243
MDA Muscle Walk
May 27, 2015
I am r?ising funds for my team, Team Jean Lillie Optimists, in the 2015 MDA Muscle Walk on June 6. All the money I raise will benefit Friedreich's Ataxia research. My fund raisīng goal: $1,500.00. My overall goal: That the next terrified 24 year-old who gets a diagnosis of FA will have options, treatments, and maybe a cure.
MY. STORY: I was diagnosed with FA in1975?no treatment, no cure, solemn outlook. During my 20s I struggled to stay on my feet. In 1984 I moved to a three wheel scooter and soon after my life changed. I had always prayed, ?God, I'll give anything to walk again.? Give what?vision, hearing, brain, courage, optimism?. Suddenly, my eyes were opened It became clear that walking fell verŷ low on the list of things I couldn't live without. So my scooter became my best friend. I developed confidence, found a hero husband, worked hard, played hard. FA was in remission until a herniated disc īn 1998.
Now, eleven years īnto retirement, I feel the side effects of FA every day--muscle atrophy, muscle cramps, slurred speech, slowing of every motion.
These feelings push me to make this request now. Researchers have discovered the cause?a lack ōf frataxen in affected cells. They are close to finding treatments with several drugs in clinical trials. Now is the time when every dollar makes a difference.. Make a donation at
http://www2.mda.org/site/TR/Walk/General? or mail a check to MDA at the address below (memo line: Muscle Walk Team Jean Lillie Optimists)
Thanks
Jean Lillie
Muscular Dystrophy Association (MDA) 909 Lily Creek Road #201 Louisville, KY 40243
