I'm too tired and crazy to write this up so I am just going to cut and paste most of an email that I sent to Fletcher awhile ago.
I am a little bit crazy tonight. I just up and left work when Kathy told me that "it's back". I started crying so hard I thought I was going to puke. Had one patient actually there and two on the way.
I told my male Hispanic CA what was going on and that I was outa there. Help me out and deal with it. I just can't be here and I have to get home to Kathy.
Scary as hell to see her relapse after the bone marrow transplant. Now they will give her more chemo. She will get sick as hell again and near ****ing death. Then they will try to find an unrelated matched donor. Kathy is 100 percent third generation Japanese American. Family comes from Wakayama province.. some podunk farming community in the north (Japan) somewhere.
Relatatives that had emigrated to America before WWII that were given the option of returning to Japan and did so went back to Tokyo not Wakayama. Kathy's Mom's side of the family was all pretty much incinerated in Nagasaki.
Family surnames are:
Father...........Minato
Mother...... Takesuye
For some reason the doctors are not even interested in testing Kathy's daughter or her cousins. Not sure how all this shit works. I do know that they will be accessing the world wide database..... Like looking in a ****ing haystack but it's the best we've got. They can do another autologous transplant but the odds are not good the second time around for a cure..but will be worth it to buy some time.
Thanks
Probably some typos in the above but at least you get the picture. I really don't know what to say. We've been doing this shit for 14 months now. Now we get to start over?
I don't WANT to start over!
Dammit!
AzRusty
Original Message to Eric which I think said it rather more succinctly
Kathy had a bone marrow biopsy yesterday.
The leukemia has come back.
Goes back in the hospital on Monday for a month of chemo... hoping to get her into complete remission again.
Goal is to find an unrelated matched donor for an allogenic bone marrow transplant.
****
I am a little bit crazy tonight. I just up and left work when Kathy told me that "it's back". I started crying so hard I thought I was going to puke. Had one patient actually there and two on the way.
I told my male Hispanic CA what was going on and that I was outa there. Help me out and deal with it. I just can't be here and I have to get home to Kathy.
Scary as hell to see her relapse after the bone marrow transplant. Now they will give her more chemo. She will get sick as hell again and near ****ing death. Then they will try to find an unrelated matched donor. Kathy is 100 percent third generation Japanese American. Family comes from Wakayama province.. some podunk farming community in the north (Japan) somewhere.
Relatatives that had emigrated to America before WWII that were given the option of returning to Japan and did so went back to Tokyo not Wakayama. Kathy's Mom's side of the family was all pretty much incinerated in Nagasaki.
Family surnames are:
Father...........Minato
Mother...... Takesuye
For some reason the doctors are not even interested in testing Kathy's daughter or her cousins. Not sure how all this shit works. I do know that they will be accessing the world wide database..... Like looking in a ****ing haystack but it's the best we've got. They can do another autologous transplant but the odds are not good the second time around for a cure..but will be worth it to buy some time.
Thanks
Probably some typos in the above but at least you get the picture. I really don't know what to say. We've been doing this shit for 14 months now. Now we get to start over?
I don't WANT to start over!
Dammit!
AzRusty
Original Message to Eric which I think said it rather more succinctly
Kathy had a bone marrow biopsy yesterday.
The leukemia has come back.
Goes back in the hospital on Monday for a month of chemo... hoping to get her into complete remission again.
Goal is to find an unrelated matched donor for an allogenic bone marrow transplant.
****
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Prayers out to you and yours, just keep in mind they fixed it before, and they'll fix it again this time and even better. (the practice makes perfect theory) If only they could find a way to take the nausea and sickness out of the chemo!! Go Get 'Em Kathy....show them all your tougher than lukemia could ever be!
